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Non treatment of MAC

MAC & Bronchiectasis | Last Active: Nov 5, 2023 | Replies (40)

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@deemaniduenas

Thank you for your response…
I was referred to the infectious diseases Dr from my pulmonary dr. Infectious disease doctor prescribed meds to be taken on Monday Wednesday & Friday Azithromycin 1 in morning: myambutol 3 in the afternoon; and rifampin 2 in the evenings. I had to take them exactly on the same time on the same weekdays . My id doctor has mentioned that he communicates with a team elsewhere when trying to treat my MAC. When I stopped taking the medication he referred me back to my pulmonary doctor who started me on the nebulizer to help generate a cough to help clear my airways. Mind you I like some of the other patients did not have experiences of heavy chronic coughing….nor was I able to provide septum samples for them to test on a regular basis. It was only when I started using the nebulizer that started coughing up gooks.
Should I get a 2nd opinion ?

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Replies to "Thank you for your response… I was referred to the infectious diseases Dr from my pulmonary..."

There are treatment choices other than the 3 antibiotics. It sounds like your doc is trying but not wholy familiar. If it's possible you may wish to look for a noted center near you. National Jewish health in Denver, Mayo Clinic, U of Texas at Tyler, and a few others depending on where you are.
Sue