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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 7 hours ago | Replies (7051)Comment receiving replies
Hi Kelsey, I am actually in search of answers on behalf of my daughter. I'm hoping to find help for her whether it is a good doctor to go to, ideas on treatment or diagnosis or just connecting her with other people that have similar symptoms. My daughter is 26 and started feeling sick last fall. She has had multiple doctors appointments, several tests run and there seems to be no answers. She is missing a ton of work, has no quality of life and is feeling very helpless and losing hope. There are no answers and no diagnosis. She has swollen lymph nodes, a constant sore throat and feeling like her throat is swollen, lack of appetite, exhaustion, fatigue and pain. I am wondering about chronic fatigue syndrome or fibromyalgia or something like that but not sure. I feel like she is giving up and I'm trying to help. I found this site and thought there may be good information here or at least recommendations of good providers that will search with her for answers. Thanks Kelsey.
Michele
Replies to "Hi Kelsey, I am actually in search of answers on behalf of my daughter. I'm hoping..."
Hi Kristine -
Thanks so much for your response and kind words. I appreciate it and we will keep searching until we have answers. I agree with you and have thought allergy of some sort as well. I hope you are doing okay and have a wonderful Sunday.
Michele
Kristine~
I am also asking you the same question as Michele. Have you been tested to see about Hyperparathroidism since you have osteoporosis?
@micheledeville Michelle, for some reason your name is not popping up in the names when I put it in but I believe I do have it spelled correctly,
I hope you and daughter get a diagnosis and help soon. I know too well what it is like to not get a diagnosis. I greatly regret not going to Boston from here (a suburb of Manchester, NH) for diagnosis when a number of months passed with no diagnosis. If you are not now going to a major medical facility I strongly advise it. I suffered for a year and four months with no diagnosis, and from what I know now it should not have been that tough, based on all of my symptoms.
JK
Hi Kelsey, I am Joan. I was just reading on Web MD the other day about "gut bacteria"not being correct (microbiome) and they believe it is causing chronic fatigue syndrome. Just printed it out 2-3 days ago. Our GI system is our #1 immune system figher so it makes sense that if the correct bacteria are not there, we become sick and get sick...i.e. maybe, chronic fatigue (as one problem they believe). They have very good articles for people to read. Web MD.com. It takes you to LIVE SCIENCE The article...Some people have more of some gut bacteria than others April 26,2017 and also related to IBS.
I have fibromyalgia...didn't say that is caused by that...they have some tests done in research hospitals that are promising. The "power" house of each cell, the mitochondria, are ineffective. That is an old theory they have help on too. They are many others now. I hope the chronic fatigue article might help.
@micheledeville Hi Michele and welcome to Mayo Connect! Thanks for posting this question with Mayo Connect. I am sorry to hear of your daughter's health problems. You said that she has seen multiple doctors and had several tests run. Have any of these doctors been a Rheumatologist? Sometimes auto-immune disorders can be attributed to these symptoms and a Rheumatologist is a good doctor to sort out this kind of matter. We look forward to hearing from you, and hope that your daughter finds the help that she needs. Teresa
@micheledeville It's great that you are advocating for your daughter.I can only imagine how helpless you feel. Reading her symptoms has me thinking more of of an immune condition, perhaps Mononucleosis. When my son was in middle school he had similar symptoms that kept him in bed for months. After seeing specialist after specialist, he was diagnosed with mono by an infectious disease doctor.
I hope you both get answers and treatment soon. Jen
This is the info from Mayo Clinic .http://mayocl.in/1RMaU4g
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Hello Michele,
I was diagnosed with Fibromyalgia and later learned that I had severe Osteoporosis which caused bone pain and a collapsing spine. The point I want to make is that sometimes doctors use that diagnoses when they don't know what else is going on. I would suggest a good Internal Medicine Doctor since they have alot more schooling. Do not give up. Continue to read about your symptoms and see as many doctors as she needs to. The immediate thought that came to mind was some kind of allergy. I have heard mold can cause problems like you describe but it could be many things but tell her not to give up. I hope for her better days.
Kristine