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DiscussionSjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)Comment receiving replies
Replies to "I likely had this for a few years, but was newly diagnosed with a lip biopsy...."
@cblue Are you living in the New York area currently? This website might have some leads on finding other patients:
https://www.sjogrensadvocate.com/
The Genetic an Rare Diseases department within NIH should be able to help you find a new rheumatologist:
https://rarediseases.info.nih.gov/
I hope this helps!