Connect
← Return to Struggling with making an osteoporosis treatment decision
Discussion
Struggling with making an osteoporosis treatment decision
Osteoporosis & Bone Health | Last Active: Jun 4 11:43pm | Replies (661)Comment receiving replies
I’m struggling, too, with a decision. I started back on Forteo (my 2nd year) in March. I did the first year of it in 2019 then switched to Risedronate. My scores were around the -4 mark. I started having a lot of GERD in the last year so decided to go ahead with my 2nd year of Forteo. However, in July/Aug I started having a lot of issues with bloating, stomach/chest cramping, brittle nails. I have also noticed an increase in hair loss??? My endocrinologist then recommended I try Tymlos. It’s been a process getting things switched over with insurance but it’s finally happened. I just have this real feeling if hesitancy to start it. It’s staring at me every time I open the refrigerator.
Anyone have any words of wisdom or thoughts?
Thank you!
Replies to "I’m struggling, too, with a decision. I started back on Forteo (my 2nd year) in March...."
In addition to the great info on Tymlos sprinkled throughout this forum (and in particular, from @windyshores), maybe consider connecting with a Tymlos clinical educator? (See https://www.tymlos.com or https://www.tymlos.com/resources-support. )
The clinical educator takes time to answer all your questions and concerns, and can walk you through (virtually) your first self-injection. They are very supportive, patient, and understanding, and are there for you. (Forteo, which I'm taking, provides the same service for its patients. I found my the nurse educator immensely helpful.)
I was really apprehensive about doing the self-injections. The first one was the hardest because I really didn't know what to expect with the needle. However, I barely felt it because it's very fine, and sometimes I don't feel it at all. Subsequent self-injections are much easier and quickly become routine.
Best wishes, and remember: you got this! 🙂
Good evening @diwint, I see you have been with Connect for about a year. Today you mentioned that GERD has interrupted your osteoporosis medication. I was on Tymlos for two years without any difficulties. So I wish you luck. Let me know if any questions arise. I am here for you.
You may also want to "chat" with @windyshores......she just completed two years of Tymlos. She found the "click" feature to be very helpful.
May you be free of suffering and the causes of suffering.
Chris
Connect
The Tymlos pen has clicks to adjust dose. Full dose is 8 clicks. If you are scared, try starting with two clicks and move up. This helped me and others.