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Struggling with making an osteoporosis treatment decision
Osteoporosis & Bone Health | Last Active: Jun 4, 2024 | Replies (661)Comment receiving replies
I’m struggling, too, with a decision. I started back on Forteo (my 2nd year) in March. I did the first year of it in 2019 then switched to Risedronate. My scores were around the -4 mark. I started having a lot of GERD in the last year so decided to go ahead with my 2nd year of Forteo. However, in July/Aug I started having a lot of issues with bloating, stomach/chest cramping, brittle nails. I have also noticed an increase in hair loss??? My endocrinologist then recommended I try Tymlos. It’s been a process getting things switched over with insurance but it’s finally happened. I just have this real feeling if hesitancy to start it. It’s staring at me every time I open the refrigerator.
Anyone have any words of wisdom or thoughts?
Thank you!
Replies to "I’m struggling, too, with a decision. I started back on Forteo (my 2nd year) in March...."
In addition to the great info on Tymlos sprinkled throughout this forum (and in particular, from @windyshores), maybe consider connecting with a Tymlos clinical educator? (See https://www.tymlos.com or https://www.tymlos.com/resources-support. )
The clinical educator takes time to answer all your questions and concerns, and can walk you through (virtually) your first self-injection. They are very supportive, patient, and understanding, and are there for you. (Forteo, which I'm taking, provides the same service for its patients. I found my the nurse educator immensely helpful.)
I was really apprehensive about doing the self-injections. The first one was the hardest because I really didn't know what to expect with the needle. However, I barely felt it because it's very fine, and sometimes I don't feel it at all. Subsequent self-injections are much easier and quickly become routine.
Best wishes, and remember: you got this! 🙂
Good evening @diwint, I see you have been with Connect for about a year. Today you mentioned that GERD has interrupted your osteoporosis medication. I was on Tymlos for two years without any difficulties. So I wish you luck. Let me know if any questions arise. I am here for you.
You may also want to "chat" with @windyshores......she just completed two years of Tymlos. She found the "click" feature to be very helpful.
May you be free of suffering and the causes of suffering.
Chris
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The Tymlos pen has clicks to adjust dose. Full dose is 8 clicks. If you are scared, try starting with two clicks and move up. This helped me and others.