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@dadcue

At first, my endocrinologist said as long as I needed prednisone for my rheumatic disease there was nothing she could do. She apologized and referred me back to my rheumatologist. I don't know what discussions happened between my endocrinologist and rheumtologist but a short time later my rheumatologist asked me if I wanted to try Actemra.

I didn't know anything about Actemra but decided I had nothing to lose. I actually expected Actemra to fail but my rheumatologist convinced me that we wouldn't know unless I was willing to try it. Actemra didn't come with any guarantees

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Replies to "At first, my endocrinologist said as long as I needed prednisone for my rheumatic disease there..."

I had the same reaction to my rheumatologist suggesting kevzara. I am in the initial learning stages about this disease. You only get so many minutes with the rheumatologist and I try to make the most of them. Some questions I don’t even know to ask. I have learned on this site about all the other affects pmr has on my lifestyle besides the pain and I am still learning.

I have been dealing with so much leg weakness. This started again about the time of my flare and has pretty much been continuous. When I went back to 20 mg prednisone it abated some but now that I am decreasing again it is becoming more prevalent. From what I have read the leg weakness is not apparent when you are on the correct prednisone dose but then it’s a catch 22