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@tsharkey01

You have a very involved endo dr. I’m jealous. I will keep trying to reduce the prednisone again and see how it goes.
I am so thankful for this site and other victims of this disease. When I share with others that I have this I get the blank stare and I totally understand that.
Again thank you.

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Replies to "You have a very involved endo dr. I’m jealous. I will keep trying to reduce the..."

At first, my endocrinologist said as long as I needed prednisone for my rheumatic disease there was nothing she could do. She apologized and referred me back to my rheumatologist. I don't know what discussions happened between my endocrinologist and rheumtologist but a short time later my rheumatologist asked me if I wanted to try Actemra.

I didn't know anything about Actemra but decided I had nothing to lose. I actually expected Actemra to fail but my rheumatologist convinced me that we wouldn't know unless I was willing to try it. Actemra didn't come with any guarantees