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← Return to Non treatment of MAC
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@deemaniduenas Welcome to Mayo Connect. Yes, the antibiotic regimen is tough, and can have side effects like you experienced.
I see that @cwal has already provided you with a very helpful link about how National Jewish Health doctors recommend to other docs how to make this decision.
I am puzzled when you say, "It was mandatory that all 3 meds had to to taken together (all or none) for at least one year. " There are many people here who have to stop one of the meds, but can continue with the others. Was this your treating doctor's requirement?
Two more questions that will help us know how to answer you - are you seeing a pulmonologist or infectious disease doctor who has experience treating MAC? Have they started you doing airway clearance daily to help remove the mucus and bacteria from your lungs?
Sue
Replies to "@deemaniduenas Welcome to Mayo Connect. Yes, the antibiotic regimen is tough, and can have side effects..."
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Thank you for your response…
I was referred to the infectious diseases Dr from my pulmonary dr. Infectious disease doctor prescribed meds to be taken on Monday Wednesday & Friday Azithromycin 1 in morning: myambutol 3 in the afternoon; and rifampin 2 in the evenings. I had to take them exactly on the same time on the same weekdays . My id doctor has mentioned that he communicates with a team elsewhere when trying to treat my MAC. When I stopped taking the medication he referred me back to my pulmonary doctor who started me on the nebulizer to help generate a cough to help clear my airways. Mind you I like some of the other patients did not have experiences of heavy chronic coughing….nor was I able to provide septum samples for them to test on a regular basis. It was only when I started using the nebulizer that started coughing up gooks.
Should I get a 2nd opinion ?