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Supplements and the Big 3

MAC & Bronchiectasis | Last Active: Oct 29, 2023 | Replies (25)

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@sueinmn

Did your doctor explain why he wants you to start them all at once? I had a cranky old pulmonologist, and didn't know any better, so I started them all at once. It was tough!

Later, I also went to an ID doc in the same clinic, and as he read my record, he commented that their protocol was to start them one at a time "But Dr A does things his way." When the ID doc changed my meds from 3X/week to daily because I wasn't getting better, we did it one at a time, with a week lag between. That was almost 5 years ago, now he would probably add Arikayce instead.

I did get vaccines while I was on the meds, and I don't remember it being any problem - they work on different parts of the immune system. But as you are saying you have no symptoms, and MAC grows slowly, would the doc be okay with waiting a month?

Of course, keep up the airway clearance. And maybe get a start on a good probiotic and start eating extra high protein foods to build up your body while you wait.

All that said, I guess it all comes down to how much you trust the doc - is he a pulmonologist, and does he seem up to date on matters like airway clearance and 7% saline?
Sue

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Replies to "Did your doctor explain why he wants you to start them all at once? I had..."

Thank you Sue. It was actually the nurse that I talked to and when I questioned her on it she gave me a reason but quite honestly I forgot what she said. He is a pulmonologist but has made no mention of airway clearance and saline. I can ask if I can wait a month. I may just decide to take the meds the way some of the other people on here have taken them rather than the way he wants. He won't like it, but it is my life. I do have a call into a Infectious Disease Dr. had to leave a message to get an Appt.