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@semurrey

HI! Thanks for sharing and I too have lobular at 58yrs old - did 19 radiation treatments and now on Letrozole since 58yrs. I am very hesitant to take bisphosphates for my osteoporosis. I am afraid of the jaw issue and I do need a few crowns replaced and have severe TMJ and manage with mouthguard. May I also ask what your surveillance scan timeline with lobular is?? I waited one year for a diagonostic mammo (few weeks ago) at Dana Farber. With severe density, I also had ultrasound. Things looked good but now am scheduled in a year for regular mammo. I just don't understand since mammos can miss 50% of cancer in dense breasts! xoxo any thoughts?

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Replies to "HI! Thanks for sharing and I too have lobular at 58yrs old - did 19 radiation..."

I do check in at DF for lobular (but only once a year)...get the rest of surveillance locally, which includes seeing some kind of doctor every 3 months (stage IIIc at the time): radiation oncology, regular oncology, surgical and primary care rounding it out. Mammogram every year, MRI every year (they are 6 months apart). Heading into my fifth year (as of 10/17).