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MAC & Bronchiectasis | Last Active: Oct 29, 2023 | Replies (25)
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Hi Sue, Just wondering how you took the Big 3. My Dr. wants me to take all 3 at once, Mon, Wed & Fri. I asked if I could start one at a time, a week apart to see if I had any reaction and he said No. I am worried now about having the Flu and RSV vac's , just had Prevnar 20. I'm pumping all this stuff into my body. I'm thinking I should wait to take the meds until after I've had the vaccines. I don't have any symptoms of MAC and it's nodular rather than cavitary. I value your opinion. Thank you so much.
Replies to "Hi Sue, Just wondering how you took the Big 3. My Dr. wants me to take..."
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Did your doctor explain why he wants you to start them all at once? I had a cranky old pulmonologist, and didn't know any better, so I started them all at once. It was tough!
Later, I also went to an ID doc in the same clinic, and as he read my record, he commented that their protocol was to start them one at a time "But Dr A does things his way." When the ID doc changed my meds from 3X/week to daily because I wasn't getting better, we did it one at a time, with a week lag between. That was almost 5 years ago, now he would probably add Arikayce instead.
I did get vaccines while I was on the meds, and I don't remember it being any problem - they work on different parts of the immune system. But as you are saying you have no symptoms, and MAC grows slowly, would the doc be okay with waiting a month?
Of course, keep up the airway clearance. And maybe get a start on a good probiotic and start eating extra high protein foods to build up your body while you wait.
All that said, I guess it all comes down to how much you trust the doc - is he a pulmonologist, and does he seem up to date on matters like airway clearance and 7% saline?
Sue