Hi Roland, I'm 74 with PMR and small fiber peripheral neuropathy. The PMR does come out of nowhere. Hopefully it will go into remission soon and you will be able to taper off of the prednisone. From what my rheumatologist told me it is a disease that can come and go...and come back again which it did in my case.

Hoping for a short occurrence for you so life will go back to the norm.

John

Hi John well today 17 May an extremely bad day woke up in pain & it has persisted all day both shoulders in particular. Called the Dr. & he told me to come in & he conferred with another Dr. I was put back on 20mg/ prednisone day plus oxytocin to help ease the pain will take that at bed time. Hope tomorrow is a better day. This PMR is really getting to me I usually have a good afternoon but not today it has been persistent all day long. As you know this is a head scratcher it's like shooting darts in the dark.

Hi Roland, I'm really sorry to hear you are in so much pain. I know it's really difficult when you can't get any relief no matter what you do. I'm hoping they can help you get the pain under control. Hoping that tomorrow is a much better and pain free day.

John

Hi Roland - I'm on my 3rd week at 5 mg and was doing pretty good until this morning. I'm feeling some stiffness and pain in my shoulders and arms. Hoping you have a pain free day today. John

Hi John well after what I went through on Monday 5-15 I am doing much better. Made an emergency visit to the Dr. on that day & he changed my intake for the prednisone. Remember I was taking 20mg every other day. I am now on 20 a day. 10mg in the AM & 10mg PM. Also he did prescribe oxycodone 7.5 mg. Now I do not take the oxy unless the pain comes back. Monday evening I did take the oxy. it relieved the pain in my hips, back & neck but not in my shoulders so I took another on Tuesday morning along with my prednisone that worked. Now just taking my pred. & am doing fine. This is crazy but right now I am pain free hey whatever works. All I know is that shoulder pains having PMR really hurts I would say Monday on a 1-10 pain scale I was a 9. Hope you are doing better.

Hi Roland, doing pretty good today. Just have some minor pain/stiffness in my shoulders, arms and hands with the 5 mg. It's only at about a 1 or 2 level on my pain scale and more like an ache so I can live with it. Hoping it will eventually subside and I can go down to 4 mgs or prednisone. Glad you are doing better too. I'm not quite as active as you are - I'm 74. I still ride a recumbent exercise bike every morning for about 30 minutes to get my legs loosened up but I need to step up my exercises for the upper body. Hoping for warmer weather soon so I can at least get some exercise doing yardwork.

Sounds like you are also making some headway, what I am finding out from you & my Dr. that the right dose has to be found & for me it looks like I found it. Now on the 31st I will start my weaning process will see how that goes. I think the oxy. did me a lot of good only took 2 of them & now the pred. is doing the rest. This morning I was able to do an hour at the gym got home went up on my roof & swept my pellet stove chimney, still feel good with absolutely no discomfort at all. Now whoever came up with this ailment?
Will keep in touch & let you know how all this progresses lets both hang in there.

Sounds like a plan!