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Side effects after completing Chemotherapy

Pancreatic Cancer | Last Active: Jan 31 4:07pm | Replies (48)

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@jk77

Hi, @kjc12. My final (8th) Folfirinox was 8-2-23; some side effects continued and some new ones emerged!

* I felt unwell for 15 days after the 8th -- a longer no. of unwell days than I'd experienced for cycles 1 thru 6 (7 was pretty bad, too). In case you've not been warned, chemo is cumulative; for my final four infusions, my side effects not only intensified, they stayed for a longer no. of days.
* My hair continued to fall out (I've lost about 50% of it; I would cautiously say that after 2.5 mos. I finally see fewer hairs on the pillow daily, but I'm not yet out of the woods).
* I developed mild pain in my fingertips -- akin to neuropathy, I think -- about 2 weeks after the final infusion; it has persisted to the present.
* Earlier this week, my toes began tingling -- I think this *is* neuropathy, but I'm not sure (will soon check with my onc.). So that cropped up about 2.5 mos. after the final infusion.
* I began having cystic-acne breakouts about two weeks after the final infusion; they are decreasing but haven't stopped.
* I still run a low-grade fever (about 99.5F) occasionally -- most recently on or about 10-21-23, about 2.5 mos. after the final chemo.

On the OK side, my energy level was pretty good about three weeks after my final infusion, and it remained good until I had surgery (on 10-5-23). Good luck with all of this.

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Replies to "Hi, @kjc12. My final (8th) Folfirinox was 8-2-23; some side effects continued and some new ones..."

Thank you for all your input. My husband has also had most of the same side effects you mentioned. We must just accept that this all will take some time to resolve and find a “new normal”. I wish you a speedy and gentle recovery after your Whipple. My husband’s Whipple was in Feb. 2023 and then 10 cycles of Chemo. If I can give you any advice regarding Whipple recovery, please let me know. God bless.