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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 20 hours ago | Replies (7049)

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@susiequ

Hi, I am new to the group and I suffer with chronic pelvic pain and have been for the past five years. I've seen every doctor imaginable and have had every test done you can think of. I have seen 2 pt who specialize in pelvic pain, but nothing seems to last more than a day. Anyone else suffer from this horrible disorder?

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Replies to "Hi, I am new to the group and I suffer with chronic pelvic pain and have..."

@susiequ Welcome to Connect. I'm glad you joined us. Could you share with us what you have tried for relief of pelvic pain? Has any doctor given you a diagnosis as to the cause of the pain?

I have been diagnosed with Chronic Pelvic Pain Disorder. They say it is caused from stress, but I am not 100% convinced that they have the right diagnosis. I live with a heating pad that gives me very minimal relief and soaking in hot bath offers relief for the moment. I take pain killers to take the edge off, because my pain level is at a 10 most days. Over the counter pain relievers don't touch the pain. Any physical activity such as: exercise, bending, and any type of housework increases the pain level. It is like have severe menstrual pain x 10. I'm thinking about trying physical therapy again, but the out of pocket cost is more than my budget will allow.

---- Mayo Clinic Connect wrote:

@susiequ I have often said that if I could take a constant hot shower or soak in a hot bath all day then I could function! I hear the frustration you have with the pain and your doctors. I have fibromyalgia, chronic neck pain due to stenosis and degenerative disc disease (DDD) I had a hysterectomy in 2013 and now get random attacks of pelvic pain. It feels like my pubic bone is going to break and I hurt all the way up to my belly button. Like you I turn to the heating pad The relief isn't great but the warmth is comforting. I'd like to refer you to a discussion in Womens Health. http://mayocl.in/2qpFhbQ @amwein is seeking support for her daughter who suffers from endometriosis and pelvic pain. You will also meet @michellecrcrn
Have you ever tried massage therapy? I find it so frustrating that supporting treatments such as massage therapy and acupuncture are generally not covered by insurance yet with pain killers provide longer relief of pain.

I had bladder pain one time. I don't know if that's different from a pelvic pain. A eurogynocologist helped me a lot. He did a procedure to relax the bladder. And I was taught skills to relax the bladder. I have not had the same problem for a long time. I don't know where your pain came from.

Chronic pelvic pain can be from numerous issues. Endometriosis, adenomyosis, scar tissue, interstitial cystitis, ovarian cysts, bowel issues such as IBS or constipation. I suffer endometriosis and have had years of drs who put it down as cramps. It took me 20 years for a dx. Laparoscopic procedure was done and that is the only way to dx endometriosis- adenomyosis is uterus. How are your menstrual cycles? Thyroid? And yes the thyroid can even cause havoc to female issues. The endocrine system is all connected.