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Would any or all of you who have lupus pain tell me more about what type of pain you are experiencing (muscle, joint, etc.)? I am new to lupus but have other illnesses and never know what might be causing what. My rheumatologist is not very forthcoming with info, either.
Also, I tried hydroxychloroquine for a few weeks, but it kicked up my ulcerative colitis. Rheumatologist says some people have fewer side effects with the brand name equivalent, Plaquenil. Has anyone switched from the generic to the brand because of bowel problems, and if so, did the brand name drug cause any havoc?
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Before I was diagnosed with SLE the pain would be like being dragged through shards of glass. I would stand in a cold crying from the pain. In the winter, I would stand out in the cold. Or someone in my family would pack ice packs on my back. The Plaquenil has been very helpful I also take Hydroxychloroquine. I have yearly, thorough eye exams to watch for signs of blindness. I’m sun and heat sensitive. My balance has declined which resulted in walking with a cane and surrendering my license. I struggle with extreme fatigue. The concern for blindness is because of Plaquenil. There are other options but Plaquenil does work for me.
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Bless you. There is a 100 mg Plaquenil that you can take versus the 200. I have to take 1/2 of the 100 due to neurological side effects. You have to be really assertive with rheumatologists to get answers. I hurt all over, I have a warm red face, I am heat intolerant and can't take the sun but a few minutes at the time. I also battle eye inflammation at times. I have suspected borderline Lupus. Praying for you to get a medicine that works for you.