Any new treatments for vagus nerve injury? Link to gastroparesis?

Posted by brendaharvey @brendaharvey, Apr 19, 2022

I am diagnosed with Gastroparesis. I took a fall prior to the start of my pain. I hit directly on my tail bone on a carpeted step. Didn’t think I was hurt at all. But looking back now 3 years later and love living through many tests, diet, medication and seem to slowing be getting better, could this fall have started the Gastroparesis? Is there a chance of getting to eat real food again without painful results? Lost from 130 pounds to 102 today. From year 2019 tom2022? Any new treatments for Vegus nerve injury??

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for erin123 @erin123

I'm really interested in the answer to the C5-C6 spinal imaging question. I have a number of disc issues that preceded my vagus issues, but nerve root compression there was the earliest diagnosed (20 years ago, when I was 30). That and a weirdly reversed cervical lordosis (instead of the usual smooth curve of the neck). Three or four years ago, after a lab tech pounded on my throat during a thyroid biopsy (benign), I suddenly developed voice loss, eye twitch, jaw pain, and pelvic floor spasm, which are now chronic. The voice loss that makes it hard for me to project over ambient noise and tire easily while speaking.

A few months later, after a routine colonoscopy irritated my digestive tract, I developed severe gut issues that became more problematic than everything else. A latent celiac gene was also triggered, and then servere milk intolerance. I'm on a severely limited diet now (No gluten, dairy, peppers, cucumber, or FODMAPs), but I still suffer from chronic stomach pain, gas, bloating, occasional diarrhea, and frequent constipation, apparently in association with accelerated gastric emptying.

After these years of close self-study, it's completely clear to me that the stomach issues are related to the voice issues, pelvic floor spasm, jaw pain, and eye twitch. They all go together, and irritation of any produces symptoms in the others. It took me a while studying anatomical charts to realize that the one thing that connects all of these is the vagus nerve.

Over these years, I've sought multiple forms of medical and alternative health treatments, including regular acupuncture, massage, and yoga. I've learned to relax muscle tension along the vagus nerve through controlled release breathing exercises and, oddly enough, by humming in a very low part of my register while directing awareness to the body part I'm trying to relax. I do this every night. Even so, and more debilitating than all the rest, what appears to be vagus nerve irritation prevents me from sleeping more than four or five hours. This was an abrupt change from sleeping 8 hours a night before the onset of these symptoms a few years ago.

I notice that my symptoms are worse when my spine is compressed, and I get mild relief from moderate traction from lying upside down on a 30-degree elevated slant board. Which makes me think of the nerve root compression at C5-C6, and another set around L4-5 and L7-S1. I'd be very interested in others' experiences, and any further suggestions for help. I'm on the verge of experimenting with CBD, because regular medications have not worked.

Jump to this post

Erin - Have you looked into Craniocervical Instability (CCI) or Craniocervical Syndrom (CCS)? Both of these conditions can cause impairment of the vagus nerve. In CCI patients it is due to lax/injured cervical ligaments in the upper cervical region (C0-C1-C2). In CCS patients similar symptoms can be caused by a number other reasons including lax/injured ligaments in the lower cervical region (C3-T1) along with other conditions such as loss of lordosis (that's me) or malrotation of C1 or C2 to name a few. A lot of good information on YouTube from Dr. Centeno and Dr. Hauser who are both providers of injection type therapies for this condition.

REPLY
Profile picture for johnbluffside @johnbluffside

I believe my vagus nerve is inflammed with IBS . rx , cognivite gut therapy , mediation, accuptunture , anyone have luck with anything?

Jump to this post

What is the injection therapy, and what is its purpose ?

REPLY
Profile picture for johnbluffside @johnbluffside

I believe my vagus nerve is inflammed with IBS . rx , cognivite gut therapy , mediation, accuptunture , anyone have luck with anything?

Jump to this post

When I have acid reflux, my esophagus becomes inflamed and I have terrible pain in my vagus nerve which makes me dizzy and weak and I feel like I am going to pass out from the pain. You talk about the CCI and CCS. Could those be causing my problem?

REPLY
Profile picture for johnbluffside @johnbluffside

I believe my vagus nerve is inflammed with IBS . rx , cognivite gut therapy , mediation, accuptunture , anyone have luck with anything?

Jump to this post

Oh my goodness, smatthews, I have never heard of these disorders, but that sounds like it could be exactly what's going on with me. I also have a reversed lordosis in my cervical spine, which I have known about for decades. I definitely have an injury at the C0-C1 level from my childhood neck accident, and I definitely have laxity along the rest of the cervical spine. Thank you so much for sharing this!

It happens that you sent me this message an hour before I had an appointment with a pain management specialist at Mayo. He was unfamiliar with the disorders and dubious about injections, but he said he would ask his colleagues about it. It's been about a week, and I have not heard back, so I will do my own research.
I did tell him how I get temporary relief when I lie on my back and my son and husband hold the back of my head with their hands, applying a tiny bit of pressure with their fingers along the occipital ridge where the spinal cord begins. Sometimes it is the only way to release the nerve cascade that happens when points further down on the vagus nerve get irritated, and I can't sleep. He was very curious about that, and glad that that provided some relief, but it's something I can't do for myself (I have tried multiple ways), and I feel bad imposing on my family members day after day, so I like to figure out another strategy.

Are these injections something you have tried? Can you tell us about your experiences? I am so grateful for your sharing this information, and very hopeful that it has worked for you. I'll be really happy if it works for me too!

REPLY
Profile picture for rozy288 @rozy288

It’s huge amounts of deep , wet ( meaning liquid like that tastes like stomach lining ) belches that are one after other and very harsh . You cannot stop them and my gut is churning non stop at same time and usually making alien 👽 like crazy noises ( that actually wake me up ). It’s also extremely exhausting.
I take Ambien 5 mg to sleep but I only stay asleep 💤 2 hrs on it then up w/ gut and symptoms every 2 hrs all night .
It’s hell . No Dr. Can figure it out and I have no food allergies as I was just tested . I eat small , clean and healthy. Doesn’t matter . Even at 6 am on empty gut , I’m just as bad .
Someone is missing something. Until then I suffer and just do my best to cope w/ it .

Jump to this post

@rozy288 have you tried sleeping with the head of your bed raised? I have done that the past few years and it has helped tremendously. Recently we got an adjustable bed and that is even better because I can raise the head of the bed higher on nights I experience worse GERD symptoms.

Bed risers are available on Amazon and any store with a bedding department. You need just one under each caster or leg of the head of your bed. I tried bricks, books, etc. before, but they just shifted around. The risers are more effective and steady.

REPLY
Profile picture for rashida @rashida

@rozy288 have you tried sleeping with the head of your bed raised? I have done that the past few years and it has helped tremendously. Recently we got an adjustable bed and that is even better because I can raise the head of the bed higher on nights I experience worse GERD symptoms.

Bed risers are available on Amazon and any store with a bedding department. You need just one under each caster or leg of the head of your bed. I tried bricks, books, etc. before, but they just shifted around. The risers are more effective and steady.

Jump to this post

I have 3 big pillows and a small memory foam pillow that I sleep with , so I’m sleeping very raised for years . I even have a huge wedge pillow but I found that less comfortable.
I’m practically sitting up .
My body produces so much gas , although I’ve tried everything they make and then some .
Thanks for suggestion .
I’m doing the best I can but honestly it’s tough .

REPLY
Profile picture for rozy288 @rozy288

I have 3 big pillows and a small memory foam pillow that I sleep with , so I’m sleeping very raised for years . I even have a huge wedge pillow but I found that less comfortable.
I’m practically sitting up .
My body produces so much gas , although I’ve tried everything they make and then some .
Thanks for suggestion .
I’m doing the best I can but honestly it’s tough .

Jump to this post

@rozy288 have you tried Beano tablets? My husband had a huge problem with gas. He stopped eating all beans and started taking Beano with all meals and snacks. It took a few days but that has helped considerably. We also switched to lactose free milk which he doesn’t drink by the glass but just added to cereals, etc.

REPLY
Profile picture for johnbluffside @johnbluffside

I believe my vagus nerve is inflammed with IBS . rx , cognivite gut therapy , mediation, accuptunture , anyone have luck with anything?

Jump to this post

No milk at all of any kind 10 years .
I’ve tried Beano and everything Rhett make for gastric health on the market .
I don’t eat beans or many foods , esp gassy foods !
My body just produces so much gas when I eat or don’t eat .
It’s disturbing to be in constant distress. Tks for caring

REPLY
Profile picture for rashida @rashida

@rozy288 have you tried Beano tablets? My husband had a huge problem with gas. He stopped eating all beans and started taking Beano with all meals and snacks. It took a few days but that has helped considerably. We also switched to lactose free milk which he doesn’t drink by the glass but just added to cereals, etc.

Jump to this post

What ingredients are in
beano , is it known under any other name, I am in Australia. Thank you.

REPLY
Profile picture for ani04 @ani04

What ingredients are in
beano , is it known under any other name, I am in Australia. Thank you.

Jump to this post

@ani04 I am in Canada.

I checked Amazon Australia and unfortunately it’s not available there either, but perhaps you have some other online shopping source that may have it …? However, your pharmacist may be able to tell you if there is an equivalent, containing its main ingredient, alpha-galactosidase. Apparently the main ingredient should not be taken just as alpha-galactosidase alone, but again, your pharmacist would know better. I find pharmacists are a better source of medication information than doctors - naturally, as they deal specifically with pharmaceuticals - and a pharmacist is easier to talk to than a doctor, especially if you befriend one at your local pharmacy. 🙂

Here are two links - one to the Beano website that gives you all the information on it, including ingredients, and the other from Very Well Health website.
https://www.beanogas.com/anti-gas-pills/beano-tablets
https://www.verywellhealth.com/beano-4767029
@rozy288 you may find these links of interest too …?

REPLY
Please sign in or register to post a reply.