I’m looking for peer reviewed research/studies/clinical literature regarding how hEDS can weaken bones OR the joints around the bone plates in the skull. 5 years I’ve had slight rocking back & forth of the right side temporal bone. Only I could hear the shifting, so was dismissed by the ever popular “that’s impossible” & “what you think is happening isn’t what’s happening”. It’s now evolved to the point of snapping so violently that it rattles my teeth, shakes my eyes & the sound is clearly audible outside of my body to anyone else in the room. When it snaps, it also pops my inner ear bone, sending pain thru my inner ear, down my jaw joint, down the side of my neck adjacent to my throat. On really bad days, when the bone is micro snapping all day on top of the more violent macro snapping that’s audible outside my body, the sharp constant pain in my inner ear is accompanied by the feeling of having cotton stuffed in my ear. It also snaps against surrounding plate joints, which puts force against them, causing shooting pains into my right eye when I bend over & a myriad of different headaches WHEN THE TEMPORAL BONE ROCKS OR SNAPS. This isn’t pain that exists unless the bone is moving. Meaning, none of these symptoms exist outside of this phenomenon; to blamed on other sources of pain. When I stay bedridden to keep this bone stable, these symptoms disappear. But, even rolling over can cause the slightest rocking or popping of the temporal bone, so this isn’t a sustainable “management of symptoms” or “cure”. It causes severe occipital migraines w/tachycardia, autonomic dysfunction (I stop breathing in my sleep w/the worst migraine episodes), weird changes to my vision; that feel like I’m not getting blood or enough oxygen to my brain. The only cure is for me to purposely snap it until it gets aligned enough that the migraine instantly disappears. Like a light switch being turned off. The snap of a finger! I can’t get any dr to believe me even though they can hear the very loud snapping of the temporal bone, behind my right ear. Not only is it excruciatingly painful (it feels like a broken bone, the same sort of deep, sharp ache around the outline of the bone joints), I’m also terrified that this bone is gonna get loose enough to irrevocably harm me, whether or not that’s “possible” in the general population. I mean, this is my skull. This can’t be good. Drs keep treating my cervical spine for the pain, (I just had a diagnostic procedure of a medial C2-C5 anesthetic block yesterday which actually triggered a migraine, triggered left side occipital & neck pain I DIDN’T have before & I felt 0 effects from the injection; might as well have been water). This does absolutely nothing to resolve the myriad symptoms that it’s causing, nor does it resolve the pain in the temporal bone joints & inner ear. They simply won’t accept it. I’m in desperate need of any credible sources regarding issues w/this specific skull bone; primarily in hEDS (my dx), but even in the general pop would be helpful. I’m stuck in a small town where absolutely no doctors know anything about this disease. I’m going into my 50s & I gotta say, it’s an extremely exhausting & hopeless situation. Reaching out to strangers publicly is my last straw. Thank you for any sources in advance.