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Psychological effects of living with neuropathy
Neuropathy | Last Active: Dec 1, 2023 | Replies (106)Comment receiving replies
I can feel your pain and frustration.
I too have bowel issues from my neuropathy.
I have no feeling when I have a bowel movement, and I need to look to see if I did.
I have to strain very hard to have a movement, no matter what I take to help.
My husband tries to help me as much as he can, but honestly no one really gets what I’m going through.
My quality of life stinks, and there’s so much I can’t do,that it’s very depressing.
Replies to "I can feel your pain and frustration. I too have bowel issues from my neuropathy. I..."
so sorry to know you are having trouble with this. Will it help to find someone in the same boat because I am? SFN affects both my gut and my bladder. I have nausea and cramping that was first diagnosed as IBS. I am either constipated or going without control. I had to trash a whole set of sheets from that. My GI dr has another patient with SFN so he understands. My bladder problems have gotten much worse recently so I now wear pads all the time, even in bed. The other day I was late for a fire alarm bccause I couldn't stop. You're right - it stinks. The problem is so public and I'm always worrying if I will be embarassed or ruin clothes. I don't have much advice but I wanted you to know someone else has been there. Lots of hugs.
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@harley22 Hello! I am SO sorry to hear of your bowel issues. It sounds as if you may be experiencing something called "cauda equina." Has your doctor given you an opinon on this? As I understand, surgery is often needed to correct the problem affecting the nerves that control bladder or bowels. I understand that you have already had several surgeries. Was the bowel issue there before the surgeries? I know this must be totally depressing. I hope that you might find a doctor who can identify and help you with this problem!