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DiscussionPsychological effects of living with neuropathy
Neuropathy | Last Active: Dec 1, 2023 | Replies (106)Comment receiving replies
Replies to "I can feel your pain and frustration. I too have bowel issues from my neuropathy. I..."
so sorry to know you are having trouble with this. Will it help to find someone in the same boat because I am? SFN affects both my gut and my bladder. I have nausea and cramping that was first diagnosed as IBS. I am either constipated or going without control. I had to trash a whole set of sheets from that. My GI dr has another patient with SFN so he understands. My bladder problems have gotten much worse recently so I now wear pads all the time, even in bed. The other day I was late for a fire alarm bccause I couldn't stop. You're right - it stinks. The problem is so public and I'm always worrying if I will be embarassed or ruin clothes. I don't have much advice but I wanted you to know someone else has been there. Lots of hugs.
@harley22 Hello! I am SO sorry to hear of your bowel issues. It sounds as if you may be experiencing something called "cauda equina." Has your doctor given you an opinon on this? As I understand, surgery is often needed to correct the problem affecting the nerves that control bladder or bowels. I understand that you have already had several surgeries. Was the bowel issue there before the surgeries? I know this must be totally depressing. I hope that you might find a doctor who can identify and help you with this problem!