← Return to Metastatic NeuroEndocrine Grade 3 - ki 80% -

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@kim1965

Hi mama neuroendocrine, it sound like you’re on a similar path of hope in managing this NET. Our path, I’ll try to keep it short. Diagnosed in April 22, with mass on pancreas, and metastasized to liver- too many to count. Oncologist referred us to Froedert Cancer Care center in Milwaukee. She started immediately on Lanreotide injections and CAT/TEM Chemo (pill version). After 9 months on those, we achieved great results with about a 80% reduction in size and numbers of tumors. That put her as eligible for surgery in March 23, removing mass on pancreas, spleen removed, gall bladder, and debulked all the tumors they could get on liver. After that changed to Ocetrcide instead of Lanreotide, and our team wanted us to do PRRT treatments to knock the remaining NET in liver to its lowest level. They presented an option of a liver transplant for her since all scans are only showing still in liver. We are 2 of 4 into the PRRT treatments, and getting tested to see if she is a good candidate for a liver transplant. So the quick info, I can tell you, is you got this, get a great medical team on your side with a NET Specialist, and they will guide you to the best decisions in your case. Hope this helps, you got this!🙏

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Replies to "Hi mama neuroendocrine, it sound like you’re on a similar path of hope in managing this..."

Hi kim. Thank you for sharing tge details. I will follow through the items and let you know. Please let me know if I van be of any support in your path.