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PMR: Hydroxychloroquine or low dose naltrexone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 5, 2023 | Replies (8)Comment receiving replies
Hello @ekolodziej.
I'd like to invite @pkalkstein @suetex to share their experiences with low dose naltrexone. You can read all of @pkalkstein's experiences in the Low Dose Naltrexone and Prednisone for PMR discussion: https://connect.mayoclinic.org/discussion/ldn-and-prednisone.
@cherrill53, @wilckdds, @joeblo746, and @jfannarbor may be able to share their experiences with hydroxychloroquine (Plaquenil) for PMR.
@ekolodziej, have you been prescribed either one of these treatments in addition to your prednisone, or are you exploring options because of your concern with long term use of prednisone and methotrexate?
Replies to "Hello @ekolodziej. I'd like to invite @pkalkstein @suetex to share their experiences with low dose naltrexone...."
I was having two kinds of pain, one when I was using my muscles and one when I was just lying there. LDN removed the nonmoving pain in less than 2 days without side effects. And kept it away. I take plaquenil for Sjogrens sicca also and has lessened the dry mouth. But it takes its time. Was on it at least 2 months before I noticed a difference. I say give LDN a try. I'm only on 2 mg.
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Thx. Have not yet been prescribed either yet. On third month of methotrexate. I see my rheumatologist at John's Hopkins in 6 weeks. So I wanted to prepare for a discussion of alternatives. The hydroxychloroquine and naltrexone were suggested by a retired MD friend. Doing my homework. Your suggested links are greatly appreciated.