← Return to Metastatic NeuroEndocrine Grade 3 - ki 80% -

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@pavlina60

Hello, mamandneuroendocrine! I was in a similar situation. My pNET was discovered accidentally during a stroke work-up in November 2022. Ki ~20% and during PET scan endometrial cancer was also found. So I had ' double surgery' - hysterectomy and dystal pancreatectomy, spleen and gall bladder removal. My tumor was 20×16 cm, so no other option than surgery and also have liver mets ( stage 4). It is called ' debulking surgery'- removing the bulk of the tumor load. Depending on your tumor size and metastasis you may be offered other options ( chemo). In my case I needed both surgeries and fast. 9 hrs and a week in the hospital and I am back to a ' new normal'. My NET is functional, so I get Lanreotide injections once every 4 wks. So far, no new growth as per CT scans. I had high blood sugar which is now close to normal, but I lack enzymes for digestion so I take Creon with every meal. Praying for you, stay strong! 💜🦓

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Replies to "Hello, mamandneuroendocrine! I was in a similar situation. My pNET was discovered accidentally during a stroke..."

Thank you Pavlina. I appreciate the time and your support and the info you provided. Is tgere anyway I can help you with?