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Hair Loss and MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2023 | Replies (30)

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@bbeers

Hi, I have just been diagnosed with Mac/Bronchiastisis and my Dr. wants me to start the Big 3, Azithromcyin, Rifampin and Ethambutol. I'm to take them all at once, Mon, Wed and Friday. I had asked to be able to start one at a time, maybe a week or two apart to see if I experience any side effects and they told me no. No mention of Amikacin. How are you taking the meds? Thank you.

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Replies to "Hi, I have just been diagnosed with Mac/Bronchiastisis and my Dr. wants me to start the..."

Hi, I just finished month one. My doctor did start me one at a time to make sure I could tolerate each one. I don’t take all of mine together. I take Azithro (on empty stomach) first thing in morning. At noon I take Ethambutol (with food) and two hours after dinner I take rifampin. So far I have done well. Every once in a while I have stomach pain after azithro. Best of luck to you!

Yes, definitely start them separately. I did the mistake of doing them all at once in full dose and my body could not handle it. I wish my doctor advised me correctly. It took months to figure out that all the awful side effects came from Rifampin and when I stopped taking it, they went away. Now I am starting Amikacin. I pray my body can handle it.