← Return to Liver Transplant to Treat NETs

Discussion

Liver Transplant to Treat NETs

Neuroendocrine Tumors (NETs) | Last Active: Oct 25, 2023 | Replies (20)
Comment receiving replies
@joy5877

Hello, how long since you were originally diagnosed with NETs? I am trying to determine what comes next since it has spread to my liver. Liver failure and shut down? How long? I am such a need-to-know person that this unknown is causing my anxiety to go off the charts. I was just diagnosed in July when they removed a tumor from my intestine and found it had spread. I am going for my second injection of Lanreotide this Friday.
Any information is appreciated.
Thank you
Joy

Jump to this post

Replies to "Hello, how long since you were originally diagnosed with NETs? I am trying to determine what..."
kim1965 | @kim1965 | Oct 24, 2023

Hi Joy, each case of NET is different. I can share our case to give you a better set of questions to ask your team or doctors. My wife was diagnosed in April 22, with mass on on pancreas and metastasis to liver with too many tumors to count. Our team immediately started CAP/TEM and Lanreotide for 9 months, reduced all tumors in both areas by 80%, which allowed for mass on pancreas to be removed, spleen removed, gall bladder removed, and as many tumors as they could get were debulked. We now are about to start 2 if 4 treatments of PRRT, with the hope of knocking down the remaining tumors in the liver to almost nothing. If that occurs, we are considered a liver transplant, to hopefully take out the remaining NET in liver. So each case has its own story, with different paths, we all are here to help you through this journey, please ask any questions you need help on. We all got this.

VIEW AND REPLY