Connect
← Return to Does anyone know of anyone whom has gotten over Long Covid Condition
Discussion
Does anyone know of anyone whom has gotten over Long Covid Condition
Post-COVID Recovery & COVID-19 | Last Active: Oct 27, 2023 | Replies (95)Comment receiving replies
i tried to reply yesterday, but somehow my message was lost.
i dodo have tremors head to toe that come and go. mostly at rest. they diminish or go away when i move around, then come back when i stop. i have no external tremors. i also have has lots of bloating, which has been made better with amla (indian gooseberry). i bought the powder and made my own capsules so i could figure out the dosage. i am right now taking Xifaxan. it has had no effect on the tremors. neither has propranolol or Zoloft.
my dr. gave me a prescription of primidone (mysoline). however, i found out that it us a barbiturate and i get reverse reactions to it so do not plan to try it. both propranolol and mysoline are recommended for long term essential tremor. i also tried an Apolloneuro device which made the tremors worse, which made me think my vagus nerve is involved (the apollo device sends sound waves to stimulate the vagus nerve).
i also take 4.5 mg LDN which has been wonderful for improving my energy levels. it has made a big difference.
if the new reaseach about LC and gut serotonin play out maybe there will be a solution. i plan to start taking either amino acids supplements or tryptophan or trying low dose lorazepam.
regards, ellie
Replies to "i tried to reply yesterday, but somehow my message was lost. i dodo have tremors head..."
Connect
Thank you for your valuable input! Especially about the Apolloneuro band. I bought one as well and after two days of use I felt that it contributed to my tremors returning and/or worsening my palpitations. I thought it was just one of those coincidences as we seems to second guess ourselves often, but hearing that this also happened to you made me feel secure in my initial observation about the device. I stopped wearing it over a month ago but to no avail...I still have the tremors that no one sees, but that I can feel. The tremors make me feel like I could run a hundred miles... as if my adrenaline is being affected by my vagus nerve. Thank you for your observations on the other meds as well. I am very sensitive to any medication (new since post covid) and don't care to try this or that if it will not help. I too have some odd reverse reactions to many meds they have tried on me--- even at children doses. I know everyone is different but I am also finding out that many of us are experiencing similar responses to symptom management. I talked to my functional medicine Dr about the Amla just a few weeks ago and she said she would have to look in to it and discuss it at our next appointment. It was recommended by a friend who is going through LC and was one of the FIRST nurses in our area to be stricken with it. She has done many local interviews and is offering advice on what works for her. She also has LYME disease which was brought out by LC. Seems when our immune systems are in check the Lyme can remain dormant and many of us can live with it but when Covid interferes the immune system leaves the door unlocked to fight stronger things and things that were once locked away are now free to roam our bodies. I have a pending Lyme disease test that was sent out to an independent lab because the hospital labs are not reimbursed for the stringent Lyme testing so unless you are flamingly positive with Lyme Disease a hospital Lyme test could give you a false negative result. So I paid 1600$ for a very reputable independent lab ( IGENEX) to run the in-depth Lyme tests for final peace of mind.