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raj (@rajeeravikumar)

Post Thyroidectomy for Thyroid Cancer Follow up

Thyroid Cancer | Last Active: Oct 24, 2023 | Replies (5)

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I've found that usually the followup is dependent on you and your ongoing levels. It can change . You goal is to surpress your natural thyroid cells desire to make more cells by "tricking" it into thinking there are plenty of cells . I had blood tests monthly (not stopping medication) , the first year. Then did a uptake scan (during that stopping the thyroid hormone/medication ) and specific foods that could affect the test. Unfortunately in my case, i had to have another strong I131 treatment and I went right back on a suppressant dose. We opted to do another scan 1 yr later, and things were pretty stable. We discussed my options , as we were concerned about radiation levels, low red blood cell function and going off the surpressant dose was concerning , so we just monitored my blood levels for the next two years before a scan. Again, after that was somewhat similar and showing reduced uptake, I just monitored blood levels every 6 months after that. Thats my schedule for almost 30 yrs now! I'm now on a lower dose and things seem stable still!
It's all about balance. They have learned so much more in last years. I treasure each day... appreciate the time I have and do my blood tests consistently... make sure I schedule a reminder in my calendar so if Dr office doesn't order them ... I call them to get it scheduled. I also use pill holders that show me each day that I've taken meds, just to be certain I dont forget. I take throid in am, 2 hrs before food or coffee.
Good luck, hope all settles down for you .

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Replies to "I've found that usually the followup is dependent on you and your ongoing levels. It can..."

Thanks @lbrockme I do have a follow up every 4 months at this point. I had 80mc radio iodine therapy 1.5 years back and follow up 3mc radio iodine scan after 6 months of the therapy and it was ok. And recently had a ultrasound scan which did show mildly thickened lymph nodes with no suspicious masses in the neck. so now following the regular 4 months checkup with Thyroglobulin measured every twice a year without stopping medicine. Is it mandatory to do a radio iodine scan every year for such cases.