Replies to I’ve dealt with pain throughout my illness but it seems to be less tolerable lately. I…

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Autoimmune Diseases | Last Active: Jan 1 10:21am | Replies (19)

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@twinkie23

I’ve dealt with pain throughout my illness but it seems to be less tolerable lately. I don’t know that the pain is increasing or the frequency is increasing but I don’t seem to be able to deal with it as well as I used to. My Rheumatologist told me not to be afraid to treat the pain. But, by treating the pain by taking meds, it seems to me that I’m accepting it instead of trying to fight or ignore the pain. Does that make sense?

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Replies to "I’ve dealt with pain throughout my illness but it seems to be less tolerable lately. I..."

dee5 | @dee5 | Oct 26, 2023

Hi @twinkle23
I was diagnosed with MCTD back in 2002. I used to be in a lot of pain in those days. Dr started me on Hydroxychloroquine. Because I had Scaladerma more so than Lupus, they had me on an infusion called Cytotoxic (I could be spelling it wrong) Got a reaction from it so they then put me on Rituxin which I have now stopped this year as it is giving me too many upper respiratory infections.
What I will tell you is that once I quit working thus lowering my stress and starting warm water therapy at a local gym did wonders to my pain. These days I hardly have Lupus flair ups. And please talk about your pain with other people. It really helps! I hope you find a medicine that works for you. Maybe time to change your Dr? I am lucky I have a Dr who is great and open to receiving emails from me 24/7. Praying for you. 🙏

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