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Autoimmune Diseases | Last Active: Jan 1 10:21am | Replies (19)
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Hi @twinkie23, I'd like to invite @sirgalahad, @debbybundy, @kuma and @covidstinks2023 to this discussion as they have all discussed a form of lupus and how they have dealt or are dealing with their pain.
@twinkie23, you have been dealing with a lot of pain and it sounds like it is really draining you both physically and mentally. Is this a recent down turn or has it been a slow process that you are trying to break out of?
Replies to "Hi @twinkie23, I'd like to invite @sirgalahad, @debbybundy, @kuma and @covidstinks2023 to this discussion as they..."
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Would any or all of you who have lupus pain tell me more about what type of pain you are experiencing (muscle, joint, etc.)? I am new to lupus but have other illnesses and never know what might be causing what. My rheumatologist is not very forthcoming with info, either.
Also, I tried hydroxychloroquine for a few weeks, but it kicked up my ulcerative colitis. Rheumatologist says some people have fewer side effects with the brand name equivalent, Plaquenil. Has anyone switched from the generic to the brand because of bowel problems, and if so, did the brand name drug cause any havoc?