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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: Apr 26 9:22am | Replies (6794)

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@swiss

Hi from Switzerland - I just joined your group in search of professoinal help - I was born in 1939, always healhy, some 12 years ago I had some strange sensation, cribbling no pain, in my feet and always cold feet and legs, so my MD suggested to check with a neurologist who tols me that I had an
idiopathic polyneuropathy and that there is no cure for it - in these 10 years I visited professors and MD`s all over the country specialized in neuropathic disorders, I was put on Lyrica for years - the pain and inconvenience increased somewhat in the first 5 years but then stayed rather stabile for another
3 to 4 years, I did a yearly electro neurography in order to be able to compare my subjective pain with the objective measuring of the electric transmission
speed of my peripheral nerves. Only twice the results showed an insignificant decrease of the electric signal speed. However in the past 3 years my
pain increased to an extent that I finally accepted to go on opioides beside Lyrica and Gabapentin.
But even there I had to increase the daily intake (presently 400 to 500mg of Palexia.
To protect myself from cold air, I heat up my bedroom to 25°C and keep special thermic cloths including shirts long socks etc. cut to fit
especially feet and leggs. I also need 1mg of Temesta expidet to calm down to catch some sleep. In measuring my oxygene uptake at
night while sleeping, they found I had sleeping apnoes and I now sleep with an airpressure mouth and nose mask. I wake up quite frequently from
pain and try to influence it with cold water feet bath, sometimes cold-hot showers etc. etc.
I am wondering who has similar problems and I wonder what this person is doing to reduce the pain from cold and yet not get to high because
then the pain is triggered on too, especially in the feet. Best wishes from Switzerland

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Replies to "Hi from Switzerland - I just joined your group in search of professoinal help - I..."

Hello @Swiss, welcome to Connect and thank you for joining us from Switzerland! Thank you for sharing your history and complications with the members of the Chronic Pain group.

I think I have an active and ongoing discussion that you may want to check out. It is called, Anyone here dealing with peripheral neuropathy? You can find the discussion using this link, http://mayocl.in/2nGKNZ8.

@swiss, if you follow the previous link, you will find a long discussion on how other members deal with peripheral neuropathy. While some members share similar symptoms as you and some experience neuropathy in a different way, you may find some of the coping strategies, remedies, and medications discussed useful. I look forward to seeing more posts from you soon.

@swiss

I was diagnosed 5+ years ago with idiopathic peripheral neuropathy, which started with some numbing, and pins and needles on my feet, up to my knees. It gradually became painful, and then burning, mainly the balls of my feet and my toes and heels. So far, my hands just get achy when I'm driving, so I always wear gloves. Beside medications for other things, I'm taking Cymbalta (Duloxetine) and Morphine sulfate contin for the neuropathy pain. I put Lidocaine cream on my feet at bedtime, and other times as needed. It numbs my feet for a couple of hours, long enough to get to sleep. I'm also trying medical Marijuana, and have found that it does help the pain.

I'll hear more from you in the peripheral neuropathy group.

Jim