Hi from Switzerland - I just joined your group in search of professoinal help - I was born in 1939, always healhy, some 12 years ago I had some strange sensation, cribbling no pain, in my feet and always cold feet and legs, so my MD suggested to check with a neurologist who tols me that I had an
idiopathic polyneuropathy and that there is no cure for it - in these 10 years I visited professors and MD`s all over the country specialized in neuropathic disorders, I was put on Lyrica for years - the pain and inconvenience increased somewhat in the first 5 years but then stayed rather stabile for another
3 to 4 years, I did a yearly electro neurography in order to be able to compare my subjective pain with the objective measuring of the electric transmission
speed of my peripheral nerves. Only twice the results showed an insignificant decrease of the electric signal speed. However in the past 3 years my
pain increased to an extent that I finally accepted to go on opioides beside Lyrica and Gabapentin.
But even there I had to increase the daily intake (presently 400 to 500mg of Palexia.
To protect myself from cold air, I heat up my bedroom to 25°C and keep special thermic cloths including shirts long socks etc. cut to fit
especially feet and leggs. I also need 1mg of Temesta expidet to calm down to catch some sleep. In measuring my oxygene uptake at
night while sleeping, they found I had sleeping apnoes and I now sleep with an airpressure mouth and nose mask. I wake up quite frequently from
pain and try to influence it with cold water feet bath, sometimes cold-hot showers etc. etc.
I am wondering who has similar problems and I wonder what this person is doing to reduce the pain from cold and yet not get to high because
then the pain is triggered on too, especially in the feet. Best wishes from Switzerland