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Liver Transplant to Treat NETs

Neuroendocrine Tumors (NETs) | Last Active: Oct 25, 2023 | Replies (20)

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@ricki8

I think we are all given a variety of answers depending on? (not sure what), but I brought up the transplant option to my surgeon. I have the primary in my small intestine and I was told the focus is on the liver and they don't want to touch the sm. intestine (unless it grows). I am expecting to have an operation in the next few weeks and will post my experience. As I am with a team (Clinical Trial), I have 5 surgeons who will be consulting with each other.

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Replies to "I think we are all given a variety of answers depending on? (not sure what), but..."

Yah, I started Somatulin Depot Feb 15, 2023. We will monitor the liver NET via MRI every 3months. However the primary in my SI caused a full blockage when my SI wrapped around it in April. Therefore I had to have SI resection, the siNET and GB removed via emergency surgery. So not really proactive but reactive. But I feel much better and gained 20# since.