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After NET surgery I went from having hypothyroidism to hyperthyroidism

Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (5)
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@bluebelle

Thank you so much for responding… I am seeing a new endocrinologist on the 31st, as my old one would never reach back out to me:( I’m the meantime I am taking 75 mg Levothyroxine and cut out the pill that was the T3 component (Levothyronine Sodium?) per my PCP until I see my new doctor. I am feeling a little bit better so maybe it’s settling down some. I am having my PET scan in 11-3 and will be seeing a new oncologist on the 6th that specializes in NET cancer. I am so ready to move forward with this and begin treatment in hopes of feeling better soon…

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Replies to "Thank you so much for responding… I am seeing a new endocrinologist on the 31st, as..."
makebadaniels73 | @makebadaniels73 | Oct 23, 2023

Hello @bluebelle ! I have Hyperthyroidism and experience some uncontrollable swelling in my lymphnods at times. I also have nodules and goiters that MOST walk around with and dnt even knw they have them. However mines get irritated due to my NETs at times. I visit an Endocrinologist every 6 months to keep an eye on my situation because if they get 1.5 in size then there will be need for treatment and/or surgery. I also have soft tissue throat scans every 6 months as well. I'm Praying for some relief for u as u seek a new Endocrinologist and I'm continuing to Pray for US ALL with this neuroendocrine that's not so much as discussed as should be,for it affects more than we know. I pray this helped in some way.

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