Your so right. It’s hard for anyone to understand the fatigue that comes with theses illnesses. Even the Doctors and family members that love us! I’m so sorry for you and your daughter. I have an ostomy and do a newsletter for Northern California groups. I wish I had the energy to do one for Sjogrens and our Autoimmune Diseases. A more personal one like we are sharing now. It’s more than FATIGUE! Thank you!