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Would like to hear from people with Sjogrens

Autoimmune Diseases | Last Active: Nov 14, 2023 | Replies (76)
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@butterfly9

I have Sjogrens so does my only Daughter. It’s been challenging to get knowledgeable drs on board. I have small fiber nueropathy from it and Dysautonomia. I thought this was the easiest to deal with. I also have fibro lupus. Pots. I hope more research comes out. Everyone just says ur fine. They don’t understand the fatigue involved.

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Replies to "I have Sjogrens so does my only Daughter. It’s been challenging to get knowledgeable drs on..."
dancing1 | @dancing1 | Oct 23, 2023

Your so right. It’s hard for anyone to understand the fatigue that comes with theses illnesses. Even the Doctors and family members that love us! I’m so sorry for you and your daughter. I have an ostomy and do a newsletter for Northern California groups. I wish I had the energy to do one for Sjogrens and our Autoimmune Diseases. A more personal one like we are sharing now. It’s more than FATIGUE! Thank you!

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