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Would like to hear from people with Sjogrens

Autoimmune Diseases | Last Active: Nov 14, 2023 | Replies (76)
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@butterfly9

We would all like this. My case is complex. Its affordability. Drs need to communicate especially with someone having multiple auto immune

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Replies to "We would all like this. My case is complex. Its affordability. Drs need to communicate especially..."
dancing1 | @dancing1 | Oct 24, 2023

So true. I’m having trouble getting the specialists to send their office visits results to my primary care doctor.

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Becky, Volunteer Mentor | @becsbuddy | Oct 27, 2023

@butterfly9 I’m sorry, I just saw your post. Do you have multiple doctors for your multiple autoimmune diseases and they don’t communicate with each other? You might like to check out the Genetic and Rare Diseases website:
https://rarediseases.info.nih.gov/
They could be a great resource for you and help you find a good doctor in your area.
https://rarediseases.org/ There is also this rare diseases organization that should also be a good resource for you.
Will you let me know if you learn anything?

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