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Liver Transplant to Treat NETs
Neuroendocrine Tumors (NETs) | Last Active: Oct 25, 2023 | Replies (20)Comment receiving replies
Hi
I recently asked the same question about just getting a liver transplant and my surgeon said that the first course of action (when the primary source is elsewhere) is to start with resection or other means rather than a transplant. He said that a transplant could likely set off a spread. I have so many tumors that about 40% of my liver is to be removed. Two things I learned - we are all different (which is why we feel like an experiment) and, at this time, NETs is with us until they find a cure. Good luck to everyone dealing with this challenging type of cancer.
Replies to "Hi I recently asked the same question about just getting a liver transplant and my surgeon..."
TY. Interesting my oncologist didn't comment on replacing my liver as I have a similar situation to what you described. However, she did say that removing NETs in the Small Intestine does not cause them to spread. She said this happens with some cancers but not this type.
Hello, how long since you were originally diagnosed with NETs? I am trying to determine what comes next since it has spread to my liver. Liver failure and shut down? How long? I am such a need-to-know person that this unknown is causing my anxiety to go off the charts. I was just diagnosed in July when they removed a tumor from my intestine and found it had spread. I am going for my second injection of Lanreotide this Friday.
Any information is appreciated.
Thank you
Joy
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We have already had the primary removed in March 23, along with gall bladder, spleen, and debulked as many tumors as they could get. We are in the middle of 4 PRRT treatments to hopefully further knock down the remaining tumors in liver. The only way the transplant happens if we pass all the protocols, meaning the liver is the only organ to still have NET, and are healthy enough and of course a donor liver. We also still have a lot of questions for our team, just trying to find as much info from other NET patients that have experienced the same decision. Thank you so much for your feedback!