To Domiha and others,
Staying in the day has helped me stay away from fearing the future and mourning over lost vigor and independence. Counseling to deal with that grief and fear also helped. My physical therapy includes Aquatherapy at a nearby university pool, along with working against gravity another day at a university clinic with my PT. Because the PN was probably an autoimmune reaction to either spinal fusion surgery for stenosis, anesthesia, or infections unrelated to the surgery, I have also been prescribed immunoglobulin infusions, and they seem to have helped along with PT. My pain has lessened over time, and for that I am grateful. I have a supportive husband, good family and friends. But it is here that we can support one another in a bewildering and “orphan” disease, with few champions of knowledge and in its infancy in research. Check out the Foundation for Peripheral Neuropathy for the best information on that research, and on help for us coping with this multi-faceted disease.