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Anyone had DCIS high-grade diagnosis?

Posted by prc73 @prc73, Oct 22, 2023

Hello has anyone here had dcis high grade 3. What was your experience? Did you have surgery? What was recovery like? I am multifocal With calcifications field like 14cm across So lumpectomy is not an option. I have already had several opinions and they all concur. I kept thinking maybe i could sit and wait but that field seems rather large . They say I may most likely not need chemo or radiation but it will depend on post surgery results.

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swirl | @swirl | Oct 22, 2023

I was diagnosed with DCIS Grade 3 about 3 weeks ago. Am having an MRI on Oct.30th to see how extensive the calcifications are. My surgeon is talking about radiation and/or hormone therapy afterwards, but right now waiting to have MRI. Good luck to both of us!

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1 reply
windyshores | @windyshores | Oct 22, 2023

@prc73 it would seem,, with the field of calcifications and multi-focal DCIS, you need a mastectomy, right? Then if your lesions are ER+ (estrogen-responsive) and HER2-, which pathology will tell you after surgery, they will do an Oncotype test to determine treatment.

I had what seemed like a nasty grade 3 invasive cancer but did not have chemo or radiation. The Oncotype guided my treatment after mastectomy (my choice) and I did hormonal meds for 5 years.

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2 replies
flowergal | @flowergal | Oct 22, 2023

I had surgery 9/14/23 a lumpectomy also for DCIS in Situ. It too was grade 3, and stage 0.
I am currently undergoing radiation treatments and will be starting AI drugs after radiation.
Recovery from surgery was ok, not too bad. I've only had two radiation treatments so far so I don't know much yet about side effects.
Good luck with your journey.

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1 reply
prc73 | @prc73 | Oct 23, 2023
In reply to @windyshores "@prc73 it would seem,, with the field of calcifications and multi-focal DCIS, you need a mastectomy,..." + (show)
@windyshores

@prc73 it would seem,, with the field of calcifications and multi-focal DCIS, you need a mastectomy, right? Then if your lesions are ER+ (estrogen-responsive) and HER2-, which pathology will tell you after surgery, they will do an Oncotype test to determine treatment.

I had what seemed like a nasty grade 3 invasive cancer but did not have chemo or radiation. The Oncotype guided my treatment after mastectomy (my choice) and I did hormonal meds for 5 years.

Jump to this post

Thank you so much for this. So far I am estrogen positive.

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1 reply
prc73 | @prc73 | Oct 23, 2023
In reply to @flowergal "I had surgery 9/14/23 a lumpectomy also for DCIS in Situ. It too was grade 3,..." + (show)
@flowergal

I had surgery 9/14/23 a lumpectomy also for DCIS in Situ. It too was grade 3, and stage 0.
I am currently undergoing radiation treatments and will be starting AI drugs after radiation.
Recovery from surgery was ok, not too bad. I've only had two radiation treatments so far so I don't know much yet about side effects.
Good luck with your journey.

Jump to this post

Thank you so much. I wish you the best in your journey too. Keep me posted please on your treatments.

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1 reply
windyshores | @windyshores | Oct 23, 2023
In reply to @prc73 "Thank you so much for this. So far I am estrogen positive." + (show)
@prc73

Thank you so much for this. So far I am estrogen positive.

Jump to this post

@prc73 that is good news. Do you know the percentage of ER or the score?

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prc73 | @prc73 | Oct 23, 2023

It says 98 percent estrogen and 2 percent progesterone .

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1 reply
chickenmom10 | @chickenmom10 | Oct 23, 2023
In reply to @windyshores "@prc73 it would seem,, with the field of calcifications and multi-focal DCIS, you need a mastectomy,..." + (show)
@windyshores

@prc73 it would seem,, with the field of calcifications and multi-focal DCIS, you need a mastectomy, right? Then if your lesions are ER+ (estrogen-responsive) and HER2-, which pathology will tell you after surgery, they will do an Oncotype test to determine treatment.

I had what seemed like a nasty grade 3 invasive cancer but did not have chemo or radiation. The Oncotype guided my treatment after mastectomy (my choice) and I did hormonal meds for 5 years.

Jump to this post

So you are off your meds? How are doing did the side effects go way?

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1 reply
chickenmom10 | @chickenmom10 | Oct 23, 2023
In reply to @prc73 "Thank you so much. I wish you the best in your journey too. Keep me posted..." + (show)
@prc73

Thank you so much. I wish you the best in your journey too. Keep me posted please on your treatments.

Jump to this post

I had radiation for 6 weeks. The only side effect was red near my collarbone where the last 3 treatment were more intense. I went to work then did my treatments. My radiation doc gave me cream to put that helped a lot.

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windyshores | @windyshores | Oct 23, 2023
In reply to @prc73 "It says 98 percent estrogen and 2 percent progesterone ." + (show)
@prc73

It says 98 percent estrogen and 2 percent progesterone .

Jump to this post

That's wonderful @prc73. Mine was the same and my Oncotype was low as a result, despite grade 3 invasive (and it was in my lymph vessels, but not nodes). Again I had no chemo, no radiation, mastectomy and hormonal meds only. I am 9 years out.

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