Anyone had DCIS high-grade diagnosis?

I was diagnosed with DCIS Grade 3 about 3 weeks ago. Am having an MRI on Oct.30th to see how extensive the calcifications are. My surgeon is talking about radiation and/or hormone therapy afterwards, but right now waiting to have MRI. Good luck to both of us!

@prc73 it would seem,, with the field of calcifications and multi-focal DCIS, you need a mastectomy, right? Then if your lesions are ER+ (estrogen-responsive) and HER2-, which pathology will tell you after surgery, they will do an Oncotype test to determine treatment.

I had what seemed like a nasty grade 3 invasive cancer but did not have chemo or radiation. The Oncotype guided my treatment after mastectomy (my choice) and I did hormonal meds for 5 years.

I had surgery 9/14/23 a lumpectomy also for DCIS in Situ. It too was grade 3, and stage 0.
I am currently undergoing radiation treatments and will be starting AI drugs after radiation.
Recovery from surgery was ok, not too bad. I've only had two radiation treatments so far so I don't know much yet about side effects.
Good luck with your journey.

Thank you so much for this. So far I am estrogen positive.

Thank you so much. I wish you the best in your journey too. Keep me posted please on your treatments.

@prc73 that is good news. Do you know the percentage of ER or the score?

It says 98 percent estrogen and 2 percent progesterone .

So you are off your meds? How are doing did the side effects go way?

I had radiation for 6 weeks. The only side effect was red near my collarbone where the last 3 treatment were more intense. I went to work then did my treatments. My radiation doc gave me cream to put that helped a lot.

That's wonderful @prc73. Mine was the same and my Oncotype was low as a result, despite grade 3 invasive (and it was in my lymph vessels, but not nodes). Again I had no chemo, no radiation, mastectomy and hormonal meds only. I am 9 years out.