Research ginger oil, ginger and teas that help lymphedema drainage.

Make sure that what you use is not contraindicated because of heart issues, any meds., diabetes, or other health issues. This goes for the teas also.

Wow, I’m so sorry to hear that! That sounds really rough to have it all over your body. I’ve had it in both arms, arm pits and some into chest after double mastectomy. More on right side where lymph nodes were taken. Painful and causes range of motion issues. Have gone through PT a few times after double mastectomy and after surgery due to chest wall recurrence. Aside from surgeries, I’ve found anytime I overuse my right arm like deep cleaning the house, it all flares up. Only PT seems to help. Good you have your husband to help. They did cupping on me there too and that helped. I bought some for home but it seemed too hard to do it on myself. My friend’s big puppy recently put a few punctures in my right arm and that triggered painful cording for a few weeks.

I’ve never heard of it spreading to the whole body. Prayers for you! Keep up the PT and stretching.

There is not a day that I don't have pain, stiffness, swelling on my mastectomy side. As long as I know what it is I can live with it (however! I am much older than you: 73) But, like you I am very active, etc. Was also diagnosed and had surgery, chemo, radiation for Stage IIIC in 2019. If I were in your spot, I would seek a second opinion at a cancer center and see what can be done. Sometimes surgery may be indicated to ameliorate the situation. Best to you.

Physical therapy has been a great help! I know that what also helps is doing the exercises at home too. The breast and arm exercises will be a life long routine for me. I get out my yoga pad, get on the floor, and stretch every day. It seems that when I do the stretches in the morning they help my movements all day. And I thought about that, sure makes sense that after 8 hours of being in bed, I'd need some stretching! Good luck.

@tduser2023 I am so sorry to hear of your pain and cording. Is your pain all over at same time or different areas? I never had heard of cording until this group.
I had a one sided mastectomy in 2019. During recovery I could not lay on my right side , surgery side, as rib area was painful only while laying on it. I thought it’s from surgery, kept trying and off and on it would be better. Fast forward 4 years and still have tenderness there. I believe it was causing spasms in my shoulder which was #7 level pain. It would come and go. I called them episodes. The spasms started getting more and more frequent, so I started seeing an acupuncturist. She said that there was scar tissue in that area from surgery. I see her regularly. The spasms are no more and all that is left is a deep sore spot - like a sore muscle. Acupuncture has worked for me but it take a long time. I’ve been 11 months.
Massage, cupping, anti inflammatory diet, (I’m not really strict but watch foods), epsom salt baths are the things I’m doing. Castrol Oil on a cloth, then heat applied on top is good for pain too.
Just some thoughts. Blessing to you and hope things improve for you.

thank you SO much! What a gift. I KNOW it will help, as they are very unlike anything that was suggested to me along the way. The very best to you!

I had cording after surgery on my right arm. My PT showed my husband how to stretch and massage it. We did it faithfully twice a day for 3 months and one day it just stopped hurting. That is exactly what PT said would happen.
Good luck, I know how much it hurts.

@tduser2023, I hope you've seen all the helpful responses to your questions and concerns about entire body pain related to axillary web syndrome or cording. How are you doing?