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hikernurse avatar

My results after 1 year of Evenity

Osteoporosis & Bone Health | Last Active: Dec 3, 2025 | Replies (91)

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Profile picture for Chris, Alumni Mentor @artscaping

Congratulations @hikernurse. What a valuable response you have written. Honest and thorough. I only have one concern and that is the future of Prolia for you. I had real problems with Prolia after 2 years of Tymlos. After 1 year with Prolia, I sought help at Mayo Clinic and was released from Prolia.

May you be free of suffering and the causes of suffering.
Chris

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Replies to "Congratulations @hikernurse. What a valuable response you have written. Honest and thorough. I only have one..."

how did the mayo clinic help get off prolia and have you suffered any fractures i had shot and in may the prolia was supposed to be outmof my body but i still have some effects fro it suffered a compression fracture 6 wks after initial shot (12/23) then suffered another the beginning this past august. my dr wants me to take evenity but i am very afraid i also was diagnosed with ra this past february just very upset because before prolia i was doing well now not so much

@artscaping so release from petrol ia but what did you do them fir medication? I finishing evenity going to mayo endo if i had know terioartide was better than evenity for spine I would went on it. Now im am ending evenity but in the middle of a fusion 7 months ago. Had I done terioartide I would been able to have a year of teripartide to build my bone in the healing fusion g phase of my fusion. Im so pissed at mayo endo he just gave me script for teripartide didn't tell me it was better for spine than evenity and now I'm screwed literally from having another bone builder during my fusion healing when I need it to build my bones. He say I have to do reclast iv or oral alendronate. I want 2 yr of teripartide now I will not be able to ever do teripartide after 3 yearly infusions of reclast because it will have screwed up my bone building cells by repressing them they will never wirk again. I need to find endo or rheumatologist who will prescribe teripartide 2 years to get its benefits of bone building : not a bone killing reclast yet. Till my bones are out of isteopenia. I failed previous alendronate pill 7 years lost bone every year. So I dont want reclast too mant risks of long term shit it stays in Body 10 years. Who was your endo at Rochester? THEY none of them are going to go off label and give me another bone builder to see screws and rods stay in me. If I do recladt bone builders may not work. Reclast may not work or I get on ruin my jaw I'm only 69 I dont want to risk it. He did not tell me anything about a good sequence or what was best to sequence these drugs for the ultimate optimal outcome of my fusion for a good fusion and not a failed one. Im doomed now . He told me nothing should have sat down with me to discuss pros and cons of all drugs before choice. He just texted me script. I did not see him..phone consult. He went over none of drugs do they work how to sequence them to best outcome for my new fusion. No compariso . Didn't tell me teripartide better for spine. Could had another year of bone builder for early fusion what I need now. Their study involving evenity then teripartide only gave 12 months teripartide. It was meant to be given in 2 years for reason it may gave goid results if they continued both drugs in the study to what they were manufactured for. So they skewed the study by not doing teripartide for 2 years comparing evenity 12 months head to head; they didn't do it now i suffer no bone. Builder in my after fusion year.