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@bluesky12

Jeff, how is it going now? I am in a similar position to your original post so wondering if there was some way you were able to cure or at least significantly lessen the internal tremors.

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Replies to "Jeff, how is it going now? I am in a similar position to your original post..."

Hello,

All going ok, relatively speaking. I am at a pretty constant state where I’m happy living with where things are, and perhaps will be forever.

Not cured/gone by any means, but still fluctuating between great days and decent days.

Still walking many miles a week and yes my legs tire afterwards but no big deal.

The bad days are usually when I don’t get enough sleep or I’m sick. The calves will really act up and pop like crazy then.

It still “moves around” on me too. For example a couple of weeks ago the vibrations flared up inside my chest. Very annoying at night! Same as usual, as I regain consciousness, they calm a lot.

I’m still taking the gabakentin. Not sure if it helps or makes a difference.

One interesting thing since I’ve written here a while ago is that over the past 2 years I’ve gotten pretty bad plantar fasciitis in my one foot. A large cause of PF can be tightness in the calves. I have a hunch that the BFS is at the root cause of why I can’t seem to get rid of the PF despite lots of treatments short of surgery.

Hang in there!