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Is everyone with pNETs on creon?
Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)Comment receiving replies
Hello @familything and welcome to the NETs support group on Mayo Connect. I'm so glad that you joined here. This is a great forum to learn about the experiences of others as well as ask questions and get support for yourself.
It sounds as if this is a recent diagnosis. Many of us, like you, had no symptoms before our diagnosis. What test or scan revealed your PNet? Have you begun chemo yet?
Replies to "Hello @familything and welcome to the NETs support group on Mayo Connect. I'm so glad that..."
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Hello. Diagnosed almost 2 years ago. Had one year of uncontrollable diarrhea. Diagnosed with IBS at first. Finally had a CT scan that showed a 2cm tumor on the pancreas with multiple lesions in the liver. Was put on Creon at that time
Treatment has been monthly Lanreotide injections and just recently moved to PRRT treatment. I guess chemo is down the road if needed.
Wonder why our treatment is different than yours. Everyone seems so different with this type of cancer
I like being on here to learn from everyone else. Thank you