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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Nov 8 5:59pm | Replies (840)

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@colleenyoung

Dream.catchr, how did your appointments go? What did you learn? How are you doing?

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Replies to "Dream.catchr, how did your appointments go? What did you learn? How are you doing?"

I met the orthopedic oncologist at Mayo this past Wednesday. She stated she wasn’t sure if it was an endochondroma or a bone infarct but she stated she did not see any malignancy on the image. Everything benign. She stated she was going to run it by a team of radiologists to confirm but stated if she found out differently she would call me. Instead I got a message in the portal that she wanted to see me in 3 months instead of 6. She looked at my labs and stated “I don’t know where City of Hope got multiple myeloma out of that.” I was relieved but the next day I chose to read the oncologist note. In it it said all that I just told you and it stated something like this “discussed red flag symptoms including pain in the distal femur, pain that wakes her from her sleep or weight bearing pain that is persistent “ I have all of that going on and I guess I just didn’t make myself clear. But what does that mean if I do? Now I wonder. I will discuss with her in 3 months. She also wants me to get a steroid injection in my hip as I have been getting those regularly anyway for the past year. I have a little tear in something in my hip and arthritis and the injections help. I’ll have that done on 10/30. I like my Doctor and her team. They were compassionate and caring. I am feeling hopeful. She is also making a referral to the oncologist there at Mayo so I can get a 2nd opinion on my breast cancer treatment. I’ve had radiation but they did not radiate my lymph node where they found the cancer so now I worry everyday. I just pray Mayo breast cancer center will accept me.

Do you orthopedic surgeon said that it was either a bone infarct or an endochondroma but for now she just wants to watch it. I go back in January for more imaging and to see her again. They also have me set up to go to the cancer center for, my breast cancer follow ups. I was dx’d ILC and as we all know it is a sneaky cancer and often shows up later in other parts of a persons body so I will need follow ups. Mayo didn’t see where City of Hope saw multiple myeloma in my blood but they will monitor my blood as well because there was one thing in my blood that could be indicative of multiple myeloma. I just wait and wait. I almost lost my job on the hormone blockers so I have had to back off on those until I see the cancer center at Mayo in January. For now I’m trying something more natural and praying a lot. Thank you for asking.