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@gynosaur42

Oh, I am so very sorry to hear that anyone is, has, or may be experiencing recurrence or metastasis. And, at the same time, I am beyond grateful for each of you sharing with us where you are, how you are and what treatments you are being offered. This is truly a gift for me. I am not in that situation at this point, but lost my mother and a sister to gyn cancers that recurred and metastasized, so I know that this possibility lurks for me, as well. My heart aches for your fear and pain, and goes out to each of you, @jjevitts, @paula21 and @naturegirl5, with hope and care.

I also want to echo @paula21’s thoughts and suggestions for you, @jjevitts. Each time there has been even a slight miscommunication (whether due to me communicating poorly, being misunderstood or even due to me hearing a response with ears that filter for hope and maybe miss a qualifying word (such as, “not” or “in the case of…”) with someone on my team, my sense of safety takes a significant hit.

I love it that you, @paula21, kept seeking and tried another oncologist until you found someone who can understand your questions and give you responses that leave you clear on what’s so. I SO hope that the benefits of the Keytruda and Lenvima keep building for you!!!

My hope for you, @jjevitts, is that you can get that kind of safety soon, too.

@jjevitts, do you have a schedule for your biopsy yet?

I am in Minnesota for one more day (airlines come to MSP from my home each way only on Thursdays and Mondays), so I’ve been visiting long-lost family members in Iowa and MSP. When I can, I am checking with all of you. It helps tremendously and I’m glad to think that staying in contact supports anyone else. My jitters didn’t get to me until the morning before my follow-up appointment. I was not expecting bad news at that appointment, but I guess the fear was lurking under the surface. Of course, I was very relieved to hear that no recurrence has been detected.

I am hoping that your time near your pond has been helpful to you, @jjevitts. As we drive between MSP and Rochester, there is so much open, rolling farmland. This makes a good receptacle for holding what I breathe out.

Again, I am so very grateful for each of you. Thank you!!!

Gynosaur

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Replies to "Oh, I am so very sorry to hear that anyone is, has, or may be experiencing..."

Good morning Gynosaur! I’m so happy to hear your appt went well in addition to being able to see extended family! That sounds like a great trip! My daughter lived in Minnesota for a few years and loved it. I had never been until my grandson was born and thought it was beautiful!
My biopsy is scheduled for this Thursday which I’m relieved, but very anxious. Sadly, I have often taken the approach out of sight out of mind. Seriously, throughout all of this I have once again been reminded communication is key and you must advocate for yourself. I usually am so afraid of being a bug, not anymore! At 68 I’m no longer going to sit back. Well at least work on it. Haha
Hope you have a safe trip back and continue to have great checkups!
Thank you so much for checking in!
Julie