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Would like to hear from people with Sjogrens
Autoimmune Diseases | Last Active: Nov 14, 2023 | Replies (76)Comment receiving replies
I went to a neurologist. They would only see me for neuropathy not sjogrens he sent me for blood tests and vein tests he said many times they show normal he told me no matter what tests showed I do have small fiber neuropathy all over he told us to get this book. Small Nerves, Bug Problems by Todd Levine MD get the book amazing read. Now I am on my way in next few weeks to a new Rhematogist until I can get a new one at Mayo Clinic.
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I have Sjogrens so does my only Daughter. It’s been challenging to get knowledgeable drs on board. I have small fiber nueropathy from it and Dysautonomia. I thought this was the easiest to deal with. I also have fibro lupus. Pots. I hope more research comes out. Everyone just says ur fine. They don’t understand the fatigue involved.