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Is it ok to vent a little bit?
Autoimmune Diseases | Last Active: Nov 18, 2023 | Replies (41)Comment receiving replies
It could be that he doesn't think my situation is that bad since my rheumatoid factor was negative. He had said that I'd have more joint damage if the RF was positive, since this started over 40 years ago.
Replies to "It could be that he doesn't think my situation is that bad since my rheumatoid factor..."
You are lucky to have a doctor who looks at your symptoms over time rather than relying on only bloodwork. I am so pissed at a "rheumatologist" I saw on Monday.
He walks in the room says I've reviewed your chart in detail. He looked at my hands and feet. And said you have 'wear and tear' arthritis because of your age (69) and weight (yes its higher then I'd like).
But, when I pointed out that my orthopedic, GI, GYN, and other issues started when I was 35 and 116#, 19 surgeries ago. And there was no such thing as an EHR back then for him to review "thoroughly".
Right now I am in tears because I'm so fudging MAD! I tried to talk to him rationally, he just kept shaking his head and saying "no". I will tell my hip/ knee guy whose office recommended him what an a-hole he is.
Please don't recommend going to Mayo... they won't take my insurance. No real options for a second opinion because the "group" of rheumatologists here won't let you see anyone else in the group once you've seen one of them.
Saw my elbow/ shoulder surgeon today who says "no wonder you're in pain". You could have a shoulder and elbow replacement because of the joint deterioration and boney overgrowth. Instead, went with cortisone shots.
When did medicine become SO siloed?
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Maybe your RA is sero negative? Ask your doctor if that is possible.