I was diagnosed with peritoneal ovarian cancer Stage 4 on Jan 17, 2020. It metastasised in my lymph nodes. I had a hysterectomy in 2001 which left my left ovary for hormones. I found a soft lump in my left clavicle area in December and had biopsy, cat scan and first oncology appt Jan 17th, went in for port Jan 21 and chemo started Jan.23rd. Rapid treatment.
Lucky-No tumors anywhere, but all lymph nodes on left side were affected. They say it started up in my left side groin node.
I had started having major rash attacks that were diagnosed as eczema for 3 years with steroid treatment. My thyroid had gone crazy and worked on that during that time too.
When they ran my Cancer Antigen blood test it came back 500. Everything moved rapidly. COVID hit a month later so my husband could not go with to infusion treatments. He would drop me off and sit in parking lot all day to chat with me. Was terrible but made me stronger for myself.
I was told if chemo did not work to prepare.
I believe in holistic medicine too. So I used both with approval of my oncologist. Prayers and positive thinking works miracles too. I was realistic and got things in order with my hubby and sons and families.
As my infusions worked my CA125 number dropped to 18 after 6 months of infusion.
I have been in remission since, I kept port in until June this year for good luck. Then decided I wanted to be relieved of all of it.
I have been told it is not cured only in remission. But My oncologist calls me his miracle!
I have not been able to find anyone with this cancer, so hoping to compare and support others treatments.