Amazing we both have a mass in the right sacrum. Initial diagnosis was in December, 2021. I had post-menopausal bleeding. I had a biopsy done. Then radical hysterectomy that included 5 lymph nodes (3 were infected). Then six months of carboplatin and paclitaxel. During this time, the cancer spread to the periaortic lymph node (positive by biopsy); I then started Immunotherapy - Keytruda and Lenvima. In February, 2023 I got my first good Pet Scan showing cancer was dissolving and shrinking. Unfortunately, after 5 months I started getting skin blisters and rashes. My oncologist stopped all treatment. After skin treatment with a dermatologist, I changed to a new oncologist who has put me back on Keytruda and Lenvima. In regards to your current situation, I'm not happy to hear you feel your communication with your dr. has been somewhat lax. That's why I got a second opinion and switched oncology care. My first oncologist is a great surgeon, but terrible at communication. My new oncologist spends at least 30 minutes with me and is a great communicator -- I fully understand where I'm at and why he felt my Immunotherapy shouldn't have been stopped. For you, try writing down each question you have and see if your dr will answer each fully. What you're going through is hard enough.

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