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@paula21

Amazing we both have a mass in the right sacrum. Initial diagnosis was in December, 2021. I had post-menopausal bleeding. I had a biopsy done. Then radical hysterectomy that included 5 lymph nodes (3 were infected). Then six months of carboplatin and paclitaxel. During this time, the cancer spread to the periaortic lymph node (positive by biopsy); I then started Immunotherapy - Keytruda and Lenvima. In February, 2023 I got my first good Pet Scan showing cancer was dissolving and shrinking. Unfortunately, after 5 months I started getting skin blisters and rashes. My oncologist stopped all treatment. After skin treatment with a dermatologist, I changed to a new oncologist who has put me back on Keytruda and Lenvima. In regards to your current situation, I'm not happy to hear you feel your communication with your dr. has been somewhat lax. That's why I got a second opinion and switched oncology care. My first oncologist is a great surgeon, but terrible at communication. My new oncologist spends at least 30 minutes with me and is a great communicator -- I fully understand where I'm at and why he felt my Immunotherapy shouldn't have been stopped. For you, try writing down each question you have and see if your dr will answer each fully. What you're going through is hard enough.

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Replies to "Amazing we both have a mass in the right sacrum. Initial diagnosis was in December, 2021...."

Oh my gosh Paula21 we are indeed kindred spirits! I’m so sorry you have gone through so much but sending prayers your treatment is working. So you are no longer have any adverse skin reactions this time? If not, that’s awesome!
I so agree with you and wish I would have trusted my gut sooner. In the last few days I have reached out to a former student that is an oncologists and she has suggested another Dr that she says is unbelievable. Like you, I am going to contact him tomorrow and set up an appointment. Just like you, my first Dr is a great surgeon, but not the same in the communication department.
Thank you so much your compassion, suggestions and listening. I will keep you posted.
Have a wonderful day! 💜