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Is everyone with pNETs on creon?

Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)
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@tomrennie

Surgery is not in the plan. The plan is to stay on capecitabine as long as it is working. I am trying to avoid Surgery if possible.

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Replies to "Surgery is not in the plan. The plan is to stay on capecitabine as long as..."
rose4jim2417 | @rose4jim2417 | Oct 28, 2023

Hello. My husband is in the same condition as you but a little worse. He was lucky to be diagnosed within a couple months and had lost 20 pounds, but was very sick. He is not on creon as it did not work for him and made him sicker. He has been on Cap/Tem for 13 rounds plus he’s been on a monthly injection of lanreotide and we are wondering if you have had this monthly injection as well.

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