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Chronic UTI

Kidney & Bladder | Last Active: 6 hours ago | Replies (57)

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@kfg

I’m reading all your posts and am grateful that I found this way to connect with people who have chronic UTI’s. I had my bladder removed because of cancer and replaced with an Indiana Pouch 4 years ago. I had UTI’s every month for the first year. Then was given low dose antibiotics for 3 years. They no longer seem to be working. I need to find a doctor who can follow me and advise me what to do. I would appreciate any comments. Thank you, Kathy

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Replies to "I’m reading all your posts and am grateful that I found this way to connect with..."

I am sorry to hear you are struggling with this. It can really pull your immune system down. I've experienced all of that and finally began researching ways to get myself as strong as I could. I take some supplements to increase my immune response. I also researched the results of my bacteria type in my UTIs ,
1. To see if it's always the same
2. To identify what types of antibiotics are the best and ensure if I see a different doc at an E.R. that's what I'm prescribed
3. I test at home to ensure I go in as early as possible with any symptoms
4. I researched what probiotic helps irradicated or at least inhibits the growth
5. Researched and purchased a reliable high quality one
6. I limit sugars... I seem to crave them right before symptoms start as an infection is building up. I dont get regular symptoms anymore... mostly fatigue... not hungry except for sugar. So I Get my carbs in a healthier way.
7. Sleep... get good sleep 9 hrs daily if poss . I have to work on it.
Now,
I felt comfortable researching all this , made me feel proactive and gave me a little control I felt I had lost in my health recovery.
It's hard when your body fights against you!
But I certainly understand if you don't, it can seem daunting. Then these 5 orv6 things that impacted me, might be questions you could ask your medical team about. Maybe that can help improve things for you . I'm moving into my 15th week without one after 5 years of every 3 to 4 weeks of serious infections with two bouts of sepsis.
Hoping you are doing well. Sending hugs!